Week 1 Bog Post

In 2013, I was diagnosed with Juvenile Idiopathic Arthritis. This is when a child develops arthritis before the age of 17 and the doctors have no explanation for why this child had developed this arthritis. Months leading up to my diagnosis, I was in extreme pain that was in my hips and knees. It really got to the point where it would hurt too much to walk. This is the point my parents took me to the doctor who explained I probably just landed on my legs the wrong way and there was nothing seriously wrong, so she just gave me pain medicine. This pain medicine worked at first, but then we soon realized there was something else wrong with my joints that this medicine could not help. We were then sent to Mott Children’s Hospital, where I was finally diagnosed with JIA. I was fist relieved and thought that I would feel so much better now that I knew what was wrong with me. However hat was not the case. Since biomedicine does the best when they are treating illnesses cause by individual error, it did not do so well trying to “fix” my joints. Especially since my arthritis has no direct cause, it was even harder trying to find a medication hat worked for me. When I first went in and was diagnosed, I was told that my arthritis could go into remission and I would no longer be in any pain. With this thought in mind, we started my first medication, which was in pill form. Soon after, they then prescribed me medicine to help my stomach pain as this medicine for my arthritis made my stomach hurt so bad that I would throw up. This is the first of many times the medical system has failed me. I still wonder why they did not change my medicine at the time rather than give me medicine to fix the side effect, but now I realize fixing a known problem is much easier than fixing an unknown problem. After a while, they did put me on another medicine, although this one did required a syringe. The fact that medicine for something as small as arthritis required a syringe, was crazy to me. However, this medicine, and many more, did not work for me, but rather caused many side effects that were then treated with other medicine. Eventually though, I did find the right medicine for my body which required me to go to the hospital every two weeks to get an infusion. It was so liberating being able to move without so much pain and be able to live my best life. My pain never really went into remission, but it did decrease a lot and that was the best thing I could wish for. I then grew into an adult, and I had to go to a new rheumatologist. This is the part of my story where the biomedical system had once failed me, or made me upset, once again. This new rheumatologist told me my arthritis did have a cause, that I have Mixed Connective Tissue Disorder. This was soon changed again, to Fibromyalgia, which lead to my doctor taking me off of the only medicine that had worked for me through the years, this being the infusion. This time of my life was very frustrating because the doctors could no get me medicine correct for a long time, however I do still realize that everyone’s body is different and not every medication works for every single person. This being said, biomedicine has still helped me a great amount, like taking care of my side effects due to my medicine for my arthritis. Although I have wished there was a miracle drug to help my pain, I do still realize that doctors and the medical system are still doing their best to help everybody, even though that is almost impossible.

One thought on “Week 1 Bog Post

  1. I’m sorry that you had to go through that at such a young age. I don’t understand why the doctors would take you off a medicine if it was working, even if they had a known cause. Fibromyelgia has no cure, and if a treatment was working well for you they shouldn’t have messed with it. While we like to think doctors are smart, they always aren’t the most intelligent people in the room, and that should always be kept in mind.

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